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Öğe 14-18 yaş grubundaki çocuklarda ilaç bilgisi ve ilaç kullanım durumlarının belirlenmesi(Sağlık ve Sosyal Yardım Vakfı, 2022) Çınar, Sevil; Boztepe, Handan; Özcebe, HilalBu çalışmanın amacı çocukların ilaçlarla ilgili bilgilerini, ilaç kul- lanım durumlarını ve bilgi kaynaklarını belirlemektir. Bu araştırma tanımlayıcı olarak Türkiye’nin başkenti olan Ankara İlindeki Mil- li Eğitim Müdürlüğü’ne bağlı farklı sosyoekonomik düzeyde olan (düşük, orta yüksek) üç okulda gerçekleştirilmiştir. Araştırmanın örneklemini seçilmiş olan okullardaki 9., 10., 11. ve 12. sınıfların- da okuyan 14-18 yaş grubundaki toplam 1082 çocuk oluşturmuş- tur. Araştırmaya katılan çocukların %81,6’sı ağrı kesici ilaçları, %47,7’si antibiyotiği, %30’u mide ilacı, %22,6’sı adale gevşetici ilaçları ve %18,8’ı stres ilaçlarını bildiklerini ifade etmişlerdir. Kronik hastalığı olan ya da hastanede yatanların, kronik hastalığı olmayan, hastanede yatmayan ve son altı ay içinde doktora gitme- yenlere kıyasla doğru ilaç kullanımıyla ilgili bilgilerinin daha fazla olduğu bulunmuş; istatistiksel olarak anlamlı farklılık saptanmıştır. Bu çalışmanın sonunda çocukların ilaçlar hakkındaki bilgilerinin geliştirilmesine gereksinim olduğu belirlenmiştir.Öğe “All in one: fear, happiness, faith” a qualitative study on experiences and needs of Turkish mothers of ınfants with congenital heart disease(Taylor and Francis, 2023) Ay, Ayşe; Çınar Özbay, Sevil; Boztepe, Handan; Gürlen, EdaHaving an infant with congenital heart disease (CHD) may cause difficul-ties and changes in mothers’ life. This study was aim to explore the experiences and needs of Turkish mothers of infants with CHD. The study was carried out with the descriptive phenomenological method from qualitative research. The study sample included 18 mothers having infants in the age range of 0 to 2 years with CHD. The data were collected using a sociodemographic data form and a semi-structured interview form. The data obtained from the interviews were evaluated using the content and thematic analysis methods. Four main themes and sub- themes emerged from the qualitative data. “Effect of getting a diagnosis” with two sub-themes (emotional changes and a protective mother-infant relationship), “All emotions in one” with two sub-themes (fearing of death and torn between fear and hope), “Influences on a mother’s life” with three sub-themes (forgetting herself, getting away from siblings’ lives and relations with spouse), and stressors with three sub-themes (loss of control, physical care and unfulfilled needs). The results of the study provide insight into how Turkish mothers subjectively experience life after CHD. Mothers expected healthcare professionals to support and understand their experiences and needs. Healthcare profes-sionals need to create an environment for mothers to cope with emo-tional difficulties, gain knowledge and care skills, and adapt to their lives.Öğe Determining the factors affecting chemotherapy-induced nausea and vomiting in children with cancer(ELSEVIER SCIENCE INC, 2023) Ay, Ayşe; Boztepe, Handan; Çınar Özbay, Sevil; Yılmaz, Pınar; Karadavut, Burcu; Burhanoğulları, Dilek; Akyüz, CananPurpose: We evaluated the factors affecting chemotherapy-induced nausea and vomiting (CINV) in children with cancer.Design and methods: This cross-sectional study was conducted with 62 children aged 9 to 18 years old with a solid tumor who received chemotherapy for the first time, and their parents. Data were collected using a data collection form, the State-Trait Anxiety Inventory for Children, the Beck Anxiety Inventory, the Spielberger StateTrait Anxiety Inventory, and the Baxter Retching Faces Scale. Data were analyzed using Spearman's correlation and logistic regression analyses.Results: Risk factors related to the child, treatment, and parent were examined. Child-related factors were determined as diagnosis (odds ratio [OR] = 5.5), time since diagnosis (OR = 1.9, OR = 4.7), pretreatment anxiety of the child (r = 0.439, r = 0.422), and past experience of nausea and vomiting before treatment (OR = 1.2). Treatment-related factors involved anti-emetic prophylaxis (OR = 4.9, OR = 9.2). Parent-related factors included pretreatment anxiety of the parent (r = 0.271, r = 0.287), accommodation (OR = 5.5), not eating (OR = 1.2, OR = 1.3), and bad smell (OR = 1.2), which were described amongst parents' as factors that trigger CINV.Conclusions: The occurrence of CINV is significantly affected by child-, treatment-, and parent-related risk factors. Practice implications: Pediatric nurses should create an environment for children and their parents to reduce their anxiety and provide basic knowledge and skills about the management of CINV.Öğe Development and psychometric analysis of a Pediatric Oncology Nurses’ Educational Needs Scale(John Wiley and Sons Inc, 2023) Kudubeş, Aslı Akdeniz; Semerci, Remziye; Çınar Özbay, Sevil; Ay, Ayşe; Boztepe, HandanBackground/objectives: It is important to determine the educational needs of pediatric oncology nurses in order to maximize and implement nursing care interventions. Therefore, this study aims to develop a valid and reliable measurement tool to determine pediatric oncology nurses’ educational needs and examine its psychometric properties. Design/methods: This methodological study was conducted with 215 pediatric oncology nurses in Turkey between December 2021 and July 2022. Data were collected with the “Nurse Information Form” and “Pediatric Oncology Nurses’ Educational Needs Scale.” IBM SPSS 21.0 and IBM AMOS 25.0 software programs were used for data analysis, and descriptive statistics were used to analyze numeric variables. Exploration and confirmatory factor analyses were performed to determine the scale's factorial structure. Results: The factorial analysis was used to test the structural validity of the scale. A five-factor structure consisting of 42 items was developed. The Cronbach's alpha coefficient for “Illness” was.978, “Chemotherapy and Side Effect” was.978, “Another Therapy and Side Effect” was.974, “Palliative Care” was.967, “Supportive Care” was.985, and the total score was.990. Fit indices resulting from the study were χ2/SD: 3.961, root mean square error of approximation (RMSEA): 0.072, goodness-of-fit index (GFI): 0.95, comparative-of-fit index (CFI): 0.96, and normed fit index (NFI): 0.95. Conclusion: The Pediatric Oncology Nurses’ Educational Needs Scale is a valid and reliable scale for pediatric oncology nurses to determine their educational needs.Öğe Examining the relationship between nursing students’ readiness, literacy and attitudes toward medical artificial intelligence(Elsevier Ltd, 2025) Boztepe, Handan; Akdeniz Kudubeş, Aslı; Semerci Şahin, Remziye; Durmuş Sarıkahya, Selma; Çınar Özbay, SevilAim: This study examined the relationships among nursing students’ readiness for medical AI, AI literacy and their attitudes toward AI within digitalization in healthcare. Background: The rapid integration of AI into healthcare highlights the need to assess future professionals' preparedness. Nursing students’ readiness, literacy and attitudes toward medical AI are key to its effective and ethical use. Design: This study is a cross-sectional, descriptive and correlational research conducted to assess nursing students’ readiness for medical AI, AI literacy and their attitudes toward AI in Türkiye. Methods: Using an online survey, this cross-sectional, descriptive and correlational study was conducted with 438 nursing students from various universities in Türkiye. Data were collected using the Medical Artificial Intelligence Readiness Scale (MAIRS), the Artificial Intelligence Literacy Scale (AILS) and the General Attitudes Toward Artificial Intelligence Scale (GAAIS). Results: The results revealed that student nurses reported high familiarity with AI (88.6 %). MAIRS was significantly correlated with AILS (r = .50), Positive GAAIS (r = .53) and inversely with Negative GAAIS (r = –.17). AILS subdimensions Awareness, Usage, Evaluation and Ethics significantly predicted MAIRS (R²=.25, p < .001). Furthermore, Usage and Evaluation significantly predicted Positive GAAIS (R²=.24, p < .001), while Usage, Evaluation and Ethics significantly predicted Negative GAAIS (R² =.06, p < .001). Conclusion: The findings underscore the importance of enhancing nursing students’ AI literacy and ethical competence to foster readiness for medical AI. Education programs should incorporate targeted content to improve students’ abilities to evaluate and ethically apply AI in healthcare settings.Öğe Inequality among adolescents in the developing countries is the main determinant of e-health literacy(Acıbadem Üniversitesi, 2022) Çınar Özbay, Sevil; Boztepe, Handan; Özcebe, HilalPurpose: In this study, it was aimed to find out the e-health literacy levels in the adolescent age group, and its relation to adolescent decision making as well as social and economic determinants of the adolescents and their families. Materials and Methods: The participants were 14–18 years old from 9-12 grades of the high schools at the different socioeconomic settlements in Turkey. The data was collected using a data collection form consisting of questions related to the adolescents and the socio-demographic characteristics of their parents, Adolescent Decision Making Scale and E-Health Literacy Scale for Adolescents. Data was collected from 1,082 adolescents aged 14 to 18 years. Results: The e-health literacy level increases with the age of the adolescents, the monthly income of the family, adolescent decision making scores. Economic status and age of the adolescents are the main factors to form their e-health literacy. Conclusion: There is an urgent need to improve e-health literacy education aiming to teach to adolescents how to find reliable health information and make appropriate decisions to prevent their own health. The e-health information literacy and services should be provided to the adolescents in low socioeconomic status as social policies of the governments in the developing countries.Öğe Integrating family-centered care to child health and diseases nursing course via distance education(Taylor & Francis Online, 2023) Çınar Özbay, Sevil; Özbay, Özkan; Boztepe, HandanThe aim of this study was to determine the impact of an online Child Health and Diseases Nursing course emphasizing family-centered care upon the perceptions of nursing students toward family-centered care. A one-group pretest-posttest model was used in this study. The research participants consisted of 88 students studying at X University, Faculty of Health Sciences, Department of Nursing. While 67.1% of the students stated that there were obstacles in implementing familycentered care, 73.9% stated that there were no facilitating elements in implementing of family-centered care. A statistically significant difference was found between the mean scores of the students’ posttest family-centered care attitude and parents’ attitude at the end of the training. This study provides insights into family-centered care, which could be used in crafting policies and interventions in nursing education in Turkey. Such insights could foster positive perceptions of family-centered care among student nurses.Öğe The mediating role of life satisfaction in the effect of caregiving burden on mental well-being in parents of children diagnosed with cleft lip/palate(W.B. Saunders, 2024) Çınar Özbay, Sevil; Boztepe, Handan; Gök, Burcu; Özgür, FigenPurpose: This study aimed to examine the effect of caregiving burden on the mental well-being of parents of children with cleft lip/palate, with life satisfaction as a mediator. Design and methods: This descriptive, cross-sectional study was conducted with a sample of 347 parents of children with cleft lip/palate. Data were collected through face-to-face interviews with the parents between March 18 and September 4, 2023. The data collection tools included a sociodemographic data form, the Zarit Burden Interview, the Warwick-Edinburgh Mental Well-Being Scale, and the Satisfaction with Life Scale. Results: It was found that parents with a higher caregiving burden had lower levels of life satisfaction. Additionally, parents with higher life satisfaction reported better mental well-being. The findings indicated that as the caregiving burden increased, the mental well-being of the parents decreased. The results suggest that life satisfaction mitigates the negative impact of caregiving burden on mental well-being. Conclusion: These findings suggest that life satisfaction plays a significant mediating role in maintaining and supporting parents' mental health. Parents with higher life satisfaction appear to cope better with the challenges posed by caregiving burden, which in turn helps them maintain better mental well-being. Practice implications: The findings show that as the caregiving burden increases, both life satisfaction and mental well-being decrease. Therefore, it is crucial to develop practical interventions to support these parents.Öğe Nursing students' views on trauma-informed pediatric nursing care and family-centered care(W.B. Saunders, 2023) Çınar Özbay, Sevil; Boztepe, Handan; Kanbay, YalçınPurpose: We studied the views of nursing students on family-centered care (FCC) and their knowledge, opinions, self-rated competence, current practice, and perceived implementation barriers with regard to trauma-informed pediatric nursing care. Methods: This survey was a descriptive correlational study. The sample consisted of 261 nursing students, 3rd and 4th years, who had completed the Child Health and Diseases Nursing Course. The data were obtained using the “Student Information Form,” “Family-Centered Care Attitude Scale,” and “trauma-informed care (TIC) Provider Survey.” Results: Nursing students were knowledgeable and held favorable opinions about TIC. The survey showed that students with higher levels and those with a hospitalization experience during childhood had higher scores regarding TIC. A positive relationship was found between the students' TIC to mean score and FCC attitude mean score. Conclusions: Nursing students are not competent to practice TIC, especially with pediatric patients. Therefore, they need to develop relevant skills for helping pediatric patients. Practice implications: Efforts to improve nursing students' trauma-informed pediatric care should highlight specific skills related to helping pediatric patients manage emotional responses to difficult medical experiences. By integrating TIC into the baccalaureate curricula, nursing educators can provide the students with appropriate skills and facilities so that they can provide holistic and highly effective care to highly vulnerable patients.Öğe Parenting stress in Turkish mothers of infants with cleft lip and/or palate(Sage Publications, 2020) Boztepe, Handan; Çınar, Sevil; Özgür, Fatma FigenOBJECTIVE: To explore parenting stress and factors affecting the mothers of infants with cleft lip and/or palate (CL/P) in Turkey. DESIGN AND PARTICIPANTS: The study compared mothers of infants born with CL/P (n = 90) with mothers of healthy infants (n = 90). Mothers completed the data collection form, the Parenting Stress Index-Short Form, and the Multidimensional Scale of Perceived Social Support. RESULTS: Mothers of infants born with CL/P had higher mean parenting stress scores than the control mothers. A significant negative relationship was found between social support and parenting stress for mothers of infants born with CL/P but was not related for control mothers. Among mothers with an infant with CL/P, the mean parenting stress scores were higher for mothers preoperatively than mothers responding postoperatively. Among mothers with an infant with a cleft, higher stress was found for diagnosis after birth, not breastfeeding, feeding difficulties, lack of fathers' support, perceived difficult infant temperament, blame, anger, and concern for the future. CONCLUSION: Parenting stress was higher and social support was lower for mothers of infants with a cleft. Treatment teams can design interventions aimed at factors related to stress, such as addressing feeding issues, teaching coping skills, and linking to social support.Öğe Predictors of parenting stress in parents of children with cancer(Churchill Livingstone, 2021) Çınar, Sevil; Boztepe, Handan; Ay, Ayşe; Yılmaz, Pınar; Güllü, Hafize; Karadavut, Burcu; Burhanoğulları, Dilek; Solmaz, Murat; Akyüz, CananPurpose: In the present study, we investigated the parenting stress experienced by parents of children with cancer and the influencing factors. Method: This was a cross-sectional and descriptive correlational study that consisted of parents of 136 children in the age group of 0–18 years who were followed up for cancer in the outpatient clinics and services of a university hospital in Turkey. Parenting Stress Index, Burden Interview, Multidimensional Scale of Perceived Social Support, Marital Life Satisfaction Scale, and Ways of Coping Questionnaire were used to collect the data. Results: No statistically significant difference was found between the parenting stress mean scores and gender of the parents of children with cancer (t = ?0.350; P = 0.727). The results of the present study showed that the economic status (t = ?4.16; P = 0.000), parents’ physical (t = 3.606; P = 0.000) and mental health status after the child is diagnosed (t = 5.647; P = 0.000), accompanying mental health problems of the child (t = 2.567; P = 0.011), and diagnosis of children at a young age (t = ?2.776; P = 0.006) increased the parenting stress of the parents. Conclusions: Nursing interventions can reduce parental stress by providing sufficient care and support during the disease process.Öğe The pediatric provider communication skills assessment scale(John Wiley and Sons Inc, 2023) Boztepe, Handan; Çınar Özbay, Sevil; Akçam, Aysun; Kanbay, YalçınProblem: Building rapport and trust between healthcare professional and patient/parents would improve satisfaction of patient/parents. The purpose of this study was to develop “The Pediatric Provider Communication Skills Assessment Scale” in this study. Methods: A trial form, with linguistic and psychometric validation and consisting of 44 statements, was administered to a sample of 325 individuals. Data were collected between January 20 and October 22, 2021. The validity of the scale was concluded after examining its construct validity and internal validity. “Exploratory factor analysis” was used for determining construct validity, and “comparison of lower-upper groups” for internal validity. “Cronbach's α reliability coefficient” and “split half test consistency coefficient” were calculated for testing the reliability of the scale. Findings: The Pediatric Provider Communication Skills Assessment Scale that we developed consists of one dimension and 20 items, and the variance it can explain was calculated as 62.3%. The Cronbach α reliability coefficient of the scale was calculated as 0.90, indicating high reliability. Conclusions: According to the findings, “The Pediatric Provider Communication Skills Assessment Scale” is a scale with features that can measure in a valid and reliable way, with high variance and a low number of items. The study aims to develop the “The Pediatric Provider Communication Skills Assessment Scale,” and present it to the literature as a validated and reliable new objective measurement tool. This study will enable us to understand more about the complex communication processes involved in pediatric care and how these may influence care delivery.Öğe Trauma-informed care in pediatric oncology nursing(John Wiley and Sons Ltd, 2025) Çınar Özbay, Sevil; Gelin, Dilek; Durmuş Sarıkahya, Selma; Boztepe, HandanBackground: Childhood cancer is highly stressful and potentially traumatic for families. While trauma-informed care (TIC) aims to address these impacts, little is known about how pediatric oncology nurses understand and use TIC in practice. Method: This study was conducted using a qualitative descriptive design to explore pediatric oncology nurses' perceptions of trauma and trauma-informed care. Fifteen nurses with at least 1 year of experience working in a pediatric oncology unit in a city hospital in Türkiye were recruited through purposive sampling. Data were collected between June and July 2025 through face-to-face interviews using a semi-structured interview guide based on the Trauma-Informed Care Pyramid, and analyzed using Braun and Clarke's six-phase thematic analysis approach. Results: Five major themes were identified: (1) family- and child-centered communication and care, (2) understanding the health effects of trauma, (3) interprofessional collaboration, (4) understanding one's own history and reactions, and (5) screening and evaluation processes. Additionally, metaphor analysis revealed that nurses frequently described trauma as destructive objects, dark colors, natural disasters, harsh seasons, and bitter tastes underscoring perceptions of trauma as overwhelming and difficult to endure. These findings highlight both the potential for TIC integration and the current gaps in systematic training and organizational support. Conclusion: Pediatric oncology nurses recognize the effects of trauma and the need for psychosocial care, yet structured TIC practices remain limited. Integrating TIC principles into nursing education, strengthening team collaboration, and implementing systematic screening are key to improving holistic, family-centered care.Öğe "Unexpected event": Having an infants with cleft lip and/or palate(Wiley, 2020) Çınar, Sevil; Ay, Ayşe; Boztepe, Handan; Gürlen, EdaThis study aimed to determine the difficulties that the mothers of infants with a cleft lip and/or palate (CL/P) go through, the problems they encounter in this process, and how they perceive the support of healthcare professionals, families, and friends. The study used a phenomenological approach from qualitative research methods. The study sample included 18 mothers of 0 to 3-month-old infants with CL/P. The data were collected using socio-demographic information form and semi-structured interview form. The data obtained from the interviews were evaluated using content and thematic analysis approaches. On the basis of the interviews conducted with mothers of infants with CL/P, the following themes emerged: (a) “unexpected event: having an infant with CL/P,” (b) “using social media,” (c) “stigma,” and (d) “uncertainty of long-term treatment.” In this study, it was determined that mothers experienced shock, confusion, sadness, and disappointment in this process; therefore, they used social media to seek support from the families as well as conducted research on the disease that involved a lot of uncertainty due to long-term treatments. The present study can help healthcare professionals, who play a role in the care and treatment of infants with CL/P, to understand and know what mothers need in the preoperative period.Öğe The use of social media among parents of infants with cleft lip and/or palate(W.B. Saunders, 2020) Çınar, Sevil; Boztepe, Handan; Özgür, Fatma FigenPurpose: To determine the purpose of the parents of infants with cleft lip and/or palate (CL/P) for using Facebook, how they share for the audience and what kind of information they search for. Design and methods: The results of the study were analyzed using qualitative and quantitative methodologies. Data were collected for one major social media platform (Facebook) from public accounts dedicated to CL/P. The former involved thematic and word count analysis for online posts on the Facebook platform, while the latter employed descriptive statistics. Results: Facebook has a total of 8 group accounts and 7695 users in Turkey. Among the 702 posts analyzed, “requesting information” was found to be the most commonly encountered theme (55.4%). This study, it was determined that especially parents of infants with CL/P need information about surgery. The “announcement” was mentioned in only 3.3% of all posts. Our text analysis of 17.134 words mentioned in posts revealed that the most common word was surgery (6.6%). Conclusions: The current study provides a comprehensive reference to the role of social media in CL/P. Practice implications: In the near future, analysis of patients' and public knowledge and perception of surgery will be an important next step in building greater awareness of its role in the management of CL/P.Öğe Validity and reliability of the Family Empowerment Scale for parents of children with cleft lip and/or palate(Wiley, 2021) Boztepe, Handan; Çınar, Sevil; Kanbay, Yalçın; Açımış, Burcu; Özgür, Figen; Terzioğlu, FisunBackground: Empowerment is recognized as a crucial concept in strengthening the position of parents in healthcare services. This study aimed to evaluate the validity and reliability of the Turkish Family Empowerment Scale (FES). Methods: This methodological study was conducted between January and March 2021, with 348 family members actively caring for their children in the age group of 0-18 years with cleft lip and/or palate (CL/P). The English FES was translated into Turkish using back translation and modified so that it is generic and convenient for all families. The construct validity, internal validity, internal consistency, and split-half test reliability and responsiveness of the Turkish FES were examined. Results: The original FES structure with three factors (family, health services provided to the child, and community participation) and 34 items was verified in Turkish culture. This obtained structure can explain 66% of the variance of the relevant concept. Scores of parents ranged between 34 and 170 points. Increasing scores indicated a positive significance regarding family empowerment. The Cronbach's ? reliability coefficient of the scale was calculated as 0.976. Conclusion: The study findings and the goodness-of-fit values indicated that the FES and its Turkish version are a valid and reliable measurement instrument to be used in Turkish culture.Öğe Which factor ımpacts medical traumatic stress for pediatric patients: Scoping review(W.B. Saunders, 2025) Çınar Özbay, Sevil; Semerci Şahin, Remziye; Akdeniz Kudubeş, Aslı; Durmuş Sarıkahya, Selma; Boztepe, HandanPurpose: The objective of this scoping review was to systematically map, categorize, and synthesize the existing research identifying the factors associated with the development of medical traumatic stress in pediatric patients receiving clinical care. Methods: This review followed the methodological framework proposed by Booth et al. (2021) and adhered to the PRISMA-ScR guidelines. Six electronic databases (PubMed, Web of Science, Cochrane Library, MEDLINE, CINAHL, and Scopus) were systematically searched until December 12, 2024. Results: Fourteen primary studies were included, covering diverse pediatric populations exposed to surgical procedures, intensive care admissions, chronic illnesses, oncological treatments, and severe infections. PMTS symptom frequency among pediatric patients ranged from 8.6 % to 60 % across studies. Key child-related risk factors included younger age, pre-existing emotional difficulties, hospitalization-related anxiety, and fear of death. Family-related factors such as parental PTSD symptoms, caregiver stress, and poor family functioning significantly influenced outcomes. Medical-related factors such as perceived life threat, emergency surgeries, repeated interventions, and hospitalization duration heightened PMTS risk. Socio-environmental influences, including low socioeconomic status, minority background, pandemic-related isolation, and social disruptions, further exacerbated vulnerability. Conclusion: Pediatric medical traumatic stress arises from a complex interplay of psychological, familial, medical, and socio-environmental factors. The findings highlight the critical need for trauma-informed, family-centered care approaches in pediatric healthcare settings. Clinical implications: The multidimensional nature of PMTS risk factors emphasizes the urgent need for early screening, trauma-informed pediatric care, and family-centered interventions tailored to the child's developmental, psychological, and sociocultural context.
