"Unexpected event": Having an infants with cleft lip and/or palate

dc.authorid0000-0002-9281-1614en_US
dc.authorid0000-0002-1574-4673en_US
dc.authorid0000-0001-6980-1568en_US
dc.authorid0000-0002-1719-9840en_US
dc.contributor.authorÇınar, Sevil
dc.contributor.authorAy, Ayşe
dc.contributor.authorBoztepe, Handan
dc.contributor.authorGürlen, Eda
dc.date.accessioned2020-11-16T11:29:51Z
dc.date.available2020-11-16T11:29:51Z
dc.date.issued2020
dc.departmentAÇÜ, Sağlık Bilimleri Fakültesien_US
dc.description.abstractThis study aimed to determine the difficulties that the mothers of infants with a cleft lip and/or palate (CL/P) go through, the problems they encounter in this process, and how they perceive the support of healthcare professionals, families, and friends. The study used a phenomenological approach from qualitative research methods. The study sample included 18 mothers of 0 to 3-month-old infants with CL/P. The data were collected using socio-demographic information form and semi-structured interview form. The data obtained from the interviews were evaluated using content and thematic analysis approaches. On the basis of the interviews conducted with mothers of infants with CL/P, the following themes emerged: (a) “unexpected event: having an infant with CL/P,” (b) “using social media,” (c) “stigma,” and (d) “uncertainty of long-term treatment.” In this study, it was determined that mothers experienced shock, confusion, sadness, and disappointment in this process; therefore, they used social media to seek support from the families as well as conducted research on the disease that involved a lot of uncertainty due to long-term treatments. The present study can help healthcare professionals, who play a role in the care and treatment of infants with CL/P, to understand and know what mothers need in the preoperative period.
dc.identifier.citationÇınar, S., Ay, A., Boztepe, H., & Gürlen, E. (2020). “Unexpected event”: Having an infants with cleft lip and/or palate. Congenital Anomalies.en_US
dc.identifier.doi10.1111/cga.12398
dc.identifier.endpage48
dc.identifier.issue2
dc.identifier.startpage38
dc.identifier.urihttps://hdl.handle.net/11494/2463
dc.identifier.volume61
dc.identifier.wosqualityQ4
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakPubMed
dc.institutionauthorÇınar, Sevil
dc.language.isoenen_US
dc.publisherWileyen_US
dc.relation.ispartofCongenital Anomalies
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectCeft lipen_US
dc.subjectCleft palateen_US
dc.subjectNeedsen_US
dc.subjectParentsen_US
dc.subjectPediatric nursingen_US
dc.title"Unexpected event": Having an infants with cleft lip and/or palateen_US
dc.typeArticle

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