"Unexpected event": Having an infants with cleft lip and/or palate
| dc.authorid | 0000-0002-9281-1614 | en_US |
| dc.authorid | 0000-0002-1574-4673 | en_US |
| dc.authorid | 0000-0001-6980-1568 | en_US |
| dc.authorid | 0000-0002-1719-9840 | en_US |
| dc.contributor.author | Çınar, Sevil | |
| dc.contributor.author | Ay, Ayşe | |
| dc.contributor.author | Boztepe, Handan | |
| dc.contributor.author | Gürlen, Eda | |
| dc.date.accessioned | 2020-11-16T11:29:51Z | |
| dc.date.available | 2020-11-16T11:29:51Z | |
| dc.date.issued | 2020 | |
| dc.department | AÇÜ, Sağlık Bilimleri Fakültesi | en_US |
| dc.description.abstract | This study aimed to determine the difficulties that the mothers of infants with a cleft lip and/or palate (CL/P) go through, the problems they encounter in this process, and how they perceive the support of healthcare professionals, families, and friends. The study used a phenomenological approach from qualitative research methods. The study sample included 18 mothers of 0 to 3-month-old infants with CL/P. The data were collected using socio-demographic information form and semi-structured interview form. The data obtained from the interviews were evaluated using content and thematic analysis approaches. On the basis of the interviews conducted with mothers of infants with CL/P, the following themes emerged: (a) “unexpected event: having an infant with CL/P,” (b) “using social media,” (c) “stigma,” and (d) “uncertainty of long-term treatment.” In this study, it was determined that mothers experienced shock, confusion, sadness, and disappointment in this process; therefore, they used social media to seek support from the families as well as conducted research on the disease that involved a lot of uncertainty due to long-term treatments. The present study can help healthcare professionals, who play a role in the care and treatment of infants with CL/P, to understand and know what mothers need in the preoperative period. | |
| dc.identifier.citation | Çınar, S., Ay, A., Boztepe, H., & Gürlen, E. (2020). “Unexpected event”: Having an infants with cleft lip and/or palate. Congenital Anomalies. | en_US |
| dc.identifier.doi | 10.1111/cga.12398 | |
| dc.identifier.endpage | 48 | |
| dc.identifier.issue | 2 | |
| dc.identifier.startpage | 38 | |
| dc.identifier.uri | https://hdl.handle.net/11494/2463 | |
| dc.identifier.volume | 61 | |
| dc.identifier.wosquality | Q4 | |
| dc.indekslendigikaynak | Web of Science | |
| dc.indekslendigikaynak | PubMed | |
| dc.institutionauthor | Çınar, Sevil | |
| dc.language.iso | en | en_US |
| dc.publisher | Wiley | en_US |
| dc.relation.ispartof | Congenital Anomalies | |
| dc.relation.publicationcategory | Makale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı | en_US |
| dc.rights | info:eu-repo/semantics/closedAccess | en_US |
| dc.subject | Ceft lip | en_US |
| dc.subject | Cleft palate | en_US |
| dc.subject | Needs | en_US |
| dc.subject | Parents | en_US |
| dc.subject | Pediatric nursing | en_US |
| dc.title | "Unexpected event": Having an infants with cleft lip and/or palate | en_US |
| dc.type | Article |












