“All in one: fear, happiness, faith” a qualitative study on experiences and needs of Turkish mothers of ınfants with congenital heart disease

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dc.authorid0000-0002-9281-1614en_US
dc.contributor.authorAy, Ayşe
dc.contributor.authorÇınar Özbay, Sevil
dc.contributor.authorBoztepe, Handan
dc.contributor.authorGürlen, Eda
dc.date.accessioned2023-04-07T12:07:01Z
dc.date.available2023-04-07T12:07:01Z
dc.date.issued2023
dc.departmentAÇÜ, Sağlık Bilimleri Fakültesi, Acil Yardım ve Afet Yönetimi Bölümüen_US
dc.description.abstractHaving an infant with congenital heart disease (CHD) may cause difficul-ties and changes in mothers’ life. This study was aim to explore the experiences and needs of Turkish mothers of infants with CHD. The study was carried out with the descriptive phenomenological method from qualitative research. The study sample included 18 mothers having infants in the age range of 0 to 2 years with CHD. The data were collected using a sociodemographic data form and a semi-structured interview form. The data obtained from the interviews were evaluated using the content and thematic analysis methods. Four main themes and sub- themes emerged from the qualitative data. “Effect of getting a diagnosis” with two sub-themes (emotional changes and a protective mother-infant relationship), “All emotions in one” with two sub-themes (fearing of death and torn between fear and hope), “Influences on a mother’s life” with three sub-themes (forgetting herself, getting away from siblings’ lives and relations with spouse), and stressors with three sub-themes (loss of control, physical care and unfulfilled needs). The results of the study provide insight into how Turkish mothers subjectively experience life after CHD. Mothers expected healthcare professionals to support and understand their experiences and needs. Healthcare profes-sionals need to create an environment for mothers to cope with emo-tional difficulties, gain knowledge and care skills, and adapt to their lives.
dc.identifier.citationAy, A., Çınar Özbay, S., Boztepe, H., & Gürlen, E. (2023). “All in One: Fear, Happiness, Faith” A Qualitative Study on Experiences and Needs of Turkish Mothers of Infants with Congenital Heart Disease. Comprehensive Child and Adolescent Nursing, 1–16. ‌en_US
dc.identifier.doi10.1080/24694193.2023.2190398
dc.identifier.urihttps://doi.org/10.1080/24694193.2023.2190398
dc.identifier.urihttps://hdl.handle.net/11494/4869
dc.identifier.wosqualityN/A
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakPubMed
dc.institutionauthorÇınar Özbay, Sevil
dc.language.isoenen_US
dc.publisherTaylor and Francisen_US
dc.relation.ispartofComprehensive Child and Adolescent Nursing
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectCongenital heart diseaseen_US
dc.subjectExperienceen_US
dc.subjectHealthcare professionalsen_US
dc.subjectMothersen_US
dc.subjectNeeden_US
dc.title“All in one: fear, happiness, faith” a qualitative study on experiences and needs of Turkish mothers of ınfants with congenital heart diseaseen_US
dc.typeArticle

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